The nights have been kind of rough these past 2 nights......that's the time of the day when
there is nothing to distract her from the itching under her "hat" and the discomfort of the "hat".
She is so irritable that the least bit of movement will wake her up and she'll cry and whine for hours. This, of course, drives me
almost to the nuthouse. I am trying to be a good, understanding mother, unfortunately, sleep
deprivation makes me less amicable. I told her I couldn't take it anymore, and true to Alannah form,
she said, "You'll have to take it." Good thing we're being video taped or I may lose control!!
Big sister Bella came to visit and they had a good time fighting over coloring pages and watching
a movie together. Bella stayed for lunch and dinner and played with all of Alannah's new toys. (Pics
to follow.) We were all really glad to see Bella, we miss her. Love you Bella.
Alannah taught the nurses some yodeling today....they got a big kick out of that. She's a girl of
many talents!
Still waiting for seizures to happen.....somehow Alannah always puts her own spin on things. When we
don't want her to have seizures, she has 50-100 per day. When we need her to have them....nada.
Go figure. Well, tomorrow is another day.
Zizi Frank came to visit today, and played the farm game with Alannah and helped her finish a color
wonder picture. Frank lost the game, but accused his 5 year old niece of cheating! Sore loser syndrome...
did I say that? Grandma and grandpa also made their daily lunch run....they are suppose to take tomorrow
off.....we'll see how that goes.
I wanted to say thanks for all the well wishes people have been sending via email and through other people...
I'll try to answer them all, but be aware that if I don't, it's only because I'm either busy with
Alannah, busy worrying, or busy bothering the nurses!
Tomorrow Alannah has another MRI....they have to see the placement of certain electrodes before the
surgery....hopefully the movie goggles are fixed.
Compare Chris came to visit on Thursday and is planning to come back tomorrow....Alannah always loves
when he comes to visit. They chit chat and we all get a big kick out of Chris's immediate reaction
to the site of anything with blood in, on or around it. I remember the day of the first surgery,
when he was with us in the waiting room, and the doctor came to update us on the procedure....I thought
he would vomit just from the details she was giving us, but he held his own! I give him kudos
for hanging in there. He's always very supportive of Alannah, which we truly appreciate. He has been,
and will always be, a good godfather.
Alannah's temperature came back up a little today, nothing they're worried about yet. Her sodium
levels have been staying stable.
Well, that's all for now.....until tomorrow.
Hugs and kisses to all.
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| Coloring - a favorite passtime for the sisters |
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| Fighting over the markers, another favorite passtime of the sisters |
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